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Title: 23andMe Bankruptcy Court Could Appoint a Privacy Ombudsman. But Will It?
The recent news about the potential bankruptcy of 23andMe has raised concerns about the privacy and security of genetic data, particularly for small, identifiable communities such as Indigenous tribes. The company’s approach to handling Indigenous genetic data without consent has already led to controversy in the past.
As part of the bankruptcy proceedings, the court may consider appointing a Chief Privacy Officer (CPO) or a Privacy Ombudsman to protect customer privacy and ensure that genetic data is not exploited without consent. However, it remains unclear whether this will happen.
Some concerns have been raised regarding 23andMe’s handling of sensitive information, including the potential sharing of data with insurance companies or law enforcement agencies. The company’s current policy states that it will not share customer data for these purposes, but it is crucial that any new buyer respects and maintains this commitment to protect privacy.
To protect their own genetic data, customers are advised to take several steps:
1. Delete your account: If you have an account with 23andMe, deleting it will prevent the sharing of any further information. However, be aware that any existing research already conducted cannot be undone.
2. Read and adjust privacy preferences: If you choose not to delete your account, ensure you carefully read any updates to the new buyer’s privacy policy. Adjust your preferences accordingly to protect your sensitive data.
Additionally, customers are encouraged to contact 23andMe in writing to express their concerns about privacy and request that the company agrees to a CPO appointment.
Source: https://www.forbes.com/sites/abigaildubiniecki/2025/03/31/23andme-bankruptcy-court-could-appoint-a-privacy-ombudsman-will-it/
